On Pain, Mourning, and Telling the Truth

The cover from my current journal, made with a postcard of Picasso’s “The Old Guitarist”–my personal icon of mourning.

I am coming to the realization that I have two functional weeks a month. Otherwise the pain level is too severe. I can’t write well when I’m this foggy.

For awhile there, for a beautiful hopeful season, I was in better remission and I had most of the month free and clear. But now, it’s back to just two weeks. If it gets worse, if it gets to be more than this, I’ll have to fly home and see my super special Dr. Woo-Woo and get back on top of this. You all have to hold me accountable to this okay? If I’m out of it more than two weeks a month you have to say, “Rachelle, it’s worth the money. Fly home. Spend a week or two on Dr. Lewis’ treatment table.”

Chronic pain is such a complex creature. It is a large part of your life, but it is not your life. It is a big part of you, but it is not who you are. Living within those paradoxical realities is challenging, perhaps as challenging as figuring out the physical bits and pieces of it–the medicines and the food allergies and the exercise and sleep needs and all the more attainable nuts and bolt-ness of it all.

I’ve wanted to write something about this for while. Something like Nicholas Wolterstorff’s Lament of a Son which not a self-help book, but the author’s story about the death of his son. The telling itself though, is helpful. The telling itself is the companionship for the journey.

In the beautiful children’s book Frida, the author says “she turned her pain into something beautiful.” I’d like to do that. I’d like to tell true things – stories that are also helpful.

I don’t know why I always leap to the idea of a book, when clearly articles and essays are my most natural length. (I just get so distracted by sparkly things, and without a real deadline I skip from project to project. This is not a boon to my agent.) At any rate, maybe an article would be more reasonable here….maybe something for The Sun. I have a couple little bits that might turn into something. This one for instance, or this artsy bit here, or here. Or maybe these more practical stories. And then there is what I wrote this morning, based on an image that came to me while I was doing Shavasana on the living room floor:

I offer this pain to you on a gilt platter.
No, held aloft in a silver bowl.
I give it to you coiled, or swirling and boiling.
A dark depth. An oily surface.

I give it to you as an offering because it is a part of me.
Because some days, it is all of me.
I give it to you as a gift, you who the wise ones says want all of me. (Though perhaps they are not so wise.)
I give it to you as a gift to see what you will make of it.

Will you touch it with a long-nailed finger and turn its surface to silver? Sprinkle it with some earthy magic? Feed it drops of Lucy’s cordial? Will you blow on it and part the waters; wave a hand and vanish it all; speak and make it to run clear; drink it down within yourself?

What will you do then,
with this pain that drains from the trinity of my eyes and the bridge of my nose?
What will you make of this dark offering?

Play us out Sister Alanis.

Posted in Soulcare
Tags: books, collage, Migraines/Chronic Pain, poetry, Soulcare |